Happy Rare Disease Day! And happy Henry’s IEP meeting day 🙂 Rare disease day is a day to honor and celebrate individuals living with rare diseases and to raise awareness about different rare diseases and syndromes. I totally forgot to prepare for it this year! In years past, I have made kind of a big… Continue reading Happy Rare Disease and IEP Day
Happy Birthday dear Henryyyyyy… Haaappy Biiiiiirthday toooooo youuuuuuu!!! Donuts, apparently, are our go-to birthday breakfast this year, mainly because donuts are my favorite and I’m the early riser who is more willing to hit the Dunkin’ or Krispy Kreme drive through than I am willing to actually cook something. And, ya know, they’re a special treat… Continue reading Henry’s 4th Birthday!
Calvin’s diagnosis of 22q was a big surprise to us. Henry’s diagnosis of Dup15q was bigger than a big surprise – it was a total shock. But this past January, Henry recieved another diagnosis and this time it was one that we did see coming. By far most individuals with Dup15q syndrome are also diagnosed… Continue reading A Diagnosis We Were Ready For
This year, since we are out here on the east coast, we had the opportunity to go to the first Dup15q Believe Walk held in Atlanta! It was an awesome way to meet other Dup15q individuals and families and to show our love and support for them while also helping raise funds for research. The… Continue reading Dup15q Believe Walk 2016
I have spent the last two weeks laminating, cutting, hot gluing, printing, copying, cleaning, and organizing from basically dawn until dusk getting my classroom and myself ready for Open House and the first day of school. Open House was last week and it went well. I’m so thankful for all the families who came to… Continue reading Ready for Our First Days of School
We have been spending time with grandparents and cousins, getting lots of sun, having lots of fun, and very much enjoying our summer. In my own effort to relax as much as possible I have been letting the blog go by the wayside a bit, but here I am, doing a little summer catch-up starting… Continue reading Happy Happy Henry Day!
Disclaimer: This post contains Amazon affiliate links and I may receive a small compensation for providing links to Amazon products. My little Super Duper Henry is almost 3 years old and seeming more and more like a big kid every minute! I call him a “Super Duper” because he was born with Dup15q Syndrome –… Continue reading How’s Henry? A Little Update on our Super “Duper”