Happy Rare Disease Day! And happy Henry’s IEP meeting day 🙂 Rare disease day is a day to honor and celebrate individuals living with rare diseases and to raise awareness about different rare diseases and syndromes. I totally forgot to prepare for it this year! In years past, I have made kind of a big… Continue reading Happy Rare Disease and IEP Day
In 2014 James and I started the tradition of choosing a New Year’s quote for our family. So each year around New Year’s we try to pick a quote that embodies our hopes and intentions for the coming year. Here are a couple of past posts about our new year’s quotes: (The post about 2016… Continue reading Live the Life You Love
Well 2017, it’s been real. Thanks for the memories. We are settling into a very quiet New Year’s Eve at home and getting ready to say goodbye to the old year and ring in the new. But first, and better late than never, here’s a recap of our year. (PS – These are not in… Continue reading 17 Things From 2017
Hello dear friends and family and kind blog readers stopping by 🙂 Before Fall completely gets away from me, though after Thanksgiving it already feels like winter! – I wanted to drop a quick recap of our very busy season. School Days These are pics from Henry’s, Calvin’s, and my first day of school! Calvin… Continue reading Fall Five
Craniofacial Clinic is one of Calvin’s annual check ups. He has been going to these clinics since he was just three months old, when he was first diagnosed with 22q11.21 Deletion Syndrome. We have attended CF clinics at Kaiser Oakland, Lucille Packard Children’s Hospital at Stanford, and now at Duke Children’s Hospital. Calvin attends these… Continue reading CF Clinic 2017
Happy Birthday dear Henryyyyyy… Haaappy Biiiiiirthday toooooo youuuuuuu!!! Donuts, apparently, are our go-to birthday breakfast this year, mainly because donuts are my favorite and I’m the early riser who is more willing to hit the Dunkin’ or Krispy Kreme drive through than I am willing to actually cook something. And, ya know, they’re a special treat… Continue reading Henry’s 4th Birthday!
Last week James and I celebrated our 10th wedding anniversary! Ten years ago on 07/07/07, we exchanged vows in my home church in Georgia and the next day we were off on our honeymoon to the Outer Banks of North Carolina with a Hobie catamaran, borrowed from the GA Tech sailing club, in tow. To celebrate… Continue reading Camp Granny and Danpa