Happy Rare Disease Day! And happy Henry’s IEP meeting day 🙂 Rare disease day is a day to honor and celebrate individuals living with rare diseases and to raise awareness about different rare diseases and syndromes. I totally forgot to prepare for it this year! In years past, I have made kind of a big… Continue reading Happy Rare Disease and IEP Day
Craniofacial Clinic is one of Calvin’s annual check ups. He has been going to these clinics since he was just three months old, when he was first diagnosed with 22q11.21 Deletion Syndrome. We have attended CF clinics at Kaiser Oakland, Lucille Packard Children’s Hospital at Stanford, and now at Duke Children’s Hospital. Calvin attends these… Continue reading CF Clinic 2017
Disclaimer: This post contains Amazon affiliate links and I may receive a small compensation for providing links to Amazon products. My little Super Duper Henry is almost 3 years old and seeming more and more like a big kid every minute! I call him a “Super Duper” because he was born with Dup15q Syndrome –… Continue reading How’s Henry? A Little Update on our Super “Duper”
We moved here in December and after the evaluation process with our new early intervention organization and new therapists and new insurance, blah, blah blah, Henry’s in-home therapies are finally starting this week. He has been in feeding therapy since about February, and Calvin’s process with the public school district went a little faster since… Continue reading Therapy Schedule in Full Swing
The type of speech therapy that Calvin does is called articulation therapy. He needs help working on pronouncing sounds and words. His language and vocabulary seem to be pretty on track for his age. He talks in full sentences, he carries on conversations, he can go on and on about his favorite dinosaurs… the only… Continue reading Memory Game Articulation Practice
Surprisingly Special 