Calvin, 22q Deletion · Family Life · Henry, Dup15q · School

Spring Five

Happy Summer!! Oh wait – I totally skipped Spring on the blog! I admit it… I just don’t prioritize blogging during the school year. The other priorities just don’t leave enough space. But school’s out for summer vacay and now I’ve got a chance to look back and write about our Spring highlights 🙂 Calvin’s… Continue reading Spring Five

Family Life

Fall Five

Hello dear friends and family and kind blog readers stopping by 🙂  Before Fall completely gets away from me, though after Thanksgiving it already feels like winter! – I wanted to drop a quick recap of our very busy season.  School Days These are pics from Henry’s, Calvin’s, and my first day of school! Calvin… Continue reading Fall Five

Calvin, 22q Deletion

CF Clinic 2017

Craniofacial Clinic is one of Calvin’s annual check ups. He has been going to these clinics since he was just three months old, when he was first diagnosed with 22q11.21 Deletion Syndrome. We have attended CF clinics at Kaiser Oakland, Lucille Packard Children’s Hospital at Stanford, and now at Duke Children’s Hospital. Calvin attends these… Continue reading CF Clinic 2017

Calvin, 22q Deletion · Family Life · School

“I’m FIVE!”

“I’m FIVE!” paired with a hand held up to show five little fingers is Calvin’s latest greeting to most people, even the people whom he has already told many times that he is now 5 since his birthday a month ago. (For the month leading up to his birthday, his standard greeting was “It’s almost my birthday!… Continue reading “I’m FIVE!”

Calvin, 22q Deletion · Family Life

Calvin’s 5th First Christmas

  Last week I took out our box of Christmas books from the attic and the boys and I started exploring them. With wide-eyed excitement, Calvin flipped through Dream Snow… Richard Scarry’s The Night Before the Night Before Christmas, The Friendly Beasts, and my personal favorite, Julie Vivas’ The Nativity. Each time we took a different book out… Continue reading Calvin’s 5th First Christmas

Family Life

Fall Back

This whole working parent business is no joke, you guys. My job is really hard sometimes and really exhausting sometimes, and parenting is also hard and exhausting sometimes, and I have been prioritizing rest and sleep and stress relievers like yoga and reading and church, because I want to be the calmest, healthiest possible version… Continue reading Fall Back

Family Life · School

Ready for Our First Days of School

I have spent the last two weeks laminating, cutting, hot gluing, printing, copying, cleaning, and organizing from basically dawn until dusk getting my classroom and myself ready for Open House and the first day of school. Open House was last week and it went well. I’m so thankful for all the families who came to… Continue reading Ready for Our First Days of School

Calvin, 22q Deletion

22q at the NC Zoo 2016

Last month, on May 22, we went to our very first 22q at the Zoo Awareness Day event! This event is organized by the International 22q11.2 Foundation and by hosts at local zoos worldwide to connect individuals with 22qDS and their families and to spread the word about 22q. Families participating in 22q at the Zoo… Continue reading 22q at the NC Zoo 2016

Calvin, 22q Deletion

Spread the Word about 22q!

Today we are off to the 22q at the Zoo event at our local(ish) zoo. 22q at the Zoo happens every year on May 22 as a chance for 22q families around the world to get together with their 22q neighbors to socialize and raise awareness. Find us on Instagram to see what we’re up… Continue reading Spread the Word about 22q!

Family Life

Therapy Schedule in Full Swing

We moved here in December and after the evaluation process with our new early intervention organization and new therapists and new insurance, blah, blah blah, Henry’s in-home therapies are finally starting this week. He has been in feeding therapy since about February, and Calvin’s process with the public school district went a little faster since… Continue reading Therapy Schedule in Full Swing