Craniofacial Clinic is one of Calvin’s annual check ups. He has been going to these clinics since he was just three months old, when he was first diagnosed with 22q11.21 Deletion Syndrome. We have attended CF clinics at Kaiser Oakland, Lucille Packard Children’s Hospital at Stanford, and now at Duke Children’s Hospital. Calvin attends these… Continue reading CF Clinic 2017
“I’m FIVE!” paired with a hand held up to show five little fingers is Calvin’s latest greeting to most people, even the people whom he has already told many times that he is now 5 since his birthday a month ago. (For the month leading up to his birthday, his standard greeting was “It’s almost my birthday!… Continue reading “I’m FIVE!”
Last week I took out our box of Christmas books from the attic and the boys and I started exploring them. With wide-eyed excitement, Calvin flipped through Dream Snow… Richard Scarry’s The Night Before the Night Before Christmas, The Friendly Beasts, and my personal favorite, Julie Vivas’ The Nativity. Each time we took a different book out… Continue reading Calvin’s 5th First Christmas
This whole working parent business is no joke, you guys. My job is really hard sometimes and really exhausting sometimes, and parenting is also hard and exhausting sometimes, and I have been prioritizing rest and sleep and stress relievers like yoga and reading and church, because I want to be the calmest, healthiest possible version… Continue reading Fall Back
I have spent the last two weeks laminating, cutting, hot gluing, printing, copying, cleaning, and organizing from basically dawn until dusk getting my classroom and myself ready for Open House and the first day of school. Open House was last week and it went well. I’m so thankful for all the families who came to… Continue reading Ready for Our First Days of School
Last month, on May 22, we went to our very first 22q at the Zoo Awareness Day event! This event is organized by the International 22q11.2 Foundation and by hosts at local zoos worldwide to connect individuals with 22qDS and their families and to spread the word about 22q. Families participating in 22q at the Zoo… Continue reading 22q at the NC Zoo 2016
Today we are off to the 22q at the Zoo event at our local(ish) zoo. 22q at the Zoo happens every year on May 22 as a chance for 22q families around the world to get together with their 22q neighbors to socialize and raise awareness. Find us on Instagram to see what we’re up… Continue reading Spread the Word about 22q!