Henry, Dup15q · School

Happy Rare Disease and IEP Day

Happy Rare Disease Day! And happy Henry’s IEP meeting day πŸ™‚ Rare disease day is a day to honor and celebrate individuals living with rare diseases and to raise awareness about different rare diseases and syndromes. I totally forgot to prepare for it this year! In years past, I have made kind of a big… Continue reading Happy Rare Disease and IEP Day

Henry, Dup15q

How’s Henry? A Little Update on our Super “Duper”

Disclaimer: This post contains Amazon affiliate links and I may receive a small compensation for providing links to Amazon products. My little Super Duper Henry is almost 3 years old and seeming more and more like a big kid every minute! I call him a “Super Duper” because he was born with Dup15q Syndrome –… Continue reading How’s Henry? A Little Update on our Super “Duper”

Family Life

Therapy Schedule in Full Swing

We moved here in December and after the evaluation process with our new early intervention organization and new therapists and new insurance, blah, blah blah, Henry’s in-home therapies are finally starting this week. He has been in feeding therapy since about February, and Calvin’s process with the public school district went a little faster since… Continue reading Therapy Schedule in Full Swing