Calvin, 22q Deletion

CF Clinic 2017

Craniofacial Clinic is one of Calvin’s annual check ups. He has been going to these clinics since he was just three months old, when he was first diagnosed with 22q11.21 Deletion Syndrome. We have attended CF clinics at Kaiser Oakland, Lucille Packard Children’s Hospital at Stanford, and now at Duke Children’s Hospital. Calvin attends these… Continue reading CF Clinic 2017

Family Life

Henry’s 4th Birthday!

Happy Birthday dear Henryyyyyy… Haaappy Biiiiiirthday toooooo youuuuuuu!!! Donuts, apparently, are our go-to birthday breakfast this year, mainly because donuts are my favorite and I’m the early riser who is more willing to hit the Dunkin’ or Krispy Kreme drive through than I am willing to actually cook something. And, ya know, they’re a special treat… Continue reading Henry’s 4th Birthday!

Family Life

Camp Granny and Danpa

Last week James and I celebrated our 10th wedding anniversary! Ten years ago on 07/07/07, we exchanged vows in my home church in Georgia and the next day we were off on our honeymoon to the Outer Banks of North Carolina with a Hobie catamaran, borrowed from the GA Tech sailing club, in tow. To celebrate… Continue reading Camp Granny and Danpa

Family Life

Summer High Five

It’s summerrrrrr!!! Summer is my FAVORITE y’all. Love the sun. Love the heat. Love the break from school. Love pretending to be a SAHM again even just for two months 😉 Olaf and I are on the same page about summer.   With sunscreen of course. Towards the end of the school year, when people… Continue reading Summer High Five

Calvin, 22q Deletion · Family Life · School

“I’m FIVE!”

“I’m FIVE!” paired with a hand held up to show five little fingers is Calvin’s latest greeting to most people, even the people whom he has already told many times that he is now 5 since his birthday a month ago. (For the month leading up to his birthday, his standard greeting was “It’s almost my birthday!… Continue reading “I’m FIVE!”

Henry, Dup15q

A Diagnosis We Were Ready For

Calvin’s diagnosis of 22q was a big surprise to us. Henry’s diagnosis of Dup15q was bigger than a big surprise – it was a total shock. But this past January, Henry recieved another diagnosis and this time it was one that we did see coming. By far most individuals with Dup15q syndrome are also diagnosed… Continue reading A Diagnosis We Were Ready For

Family Life

Snow Days and Sick Days

Cold and flu season has been BRUTAL around here. Ever since November, Calvin and Henry and I have basically been taking turns ailing with one illness or another. James has gotten the occasional cold or bug, but he has managed to stay much healthier than the rest of us. I blame school. The worst was… Continue reading Snow Days and Sick Days