Family Life

Ready (or Not!) for a Race and a Road Trip

  That quote from Tina Fey was exactly what I was telling myself back in January when I signed up to run the Kentucky Derby MiniMarathon with James’ sisters. At the time, I wasn’t a total newbie to running, but I wasn’t really in good enough shape to take on half-marathon training in the amuont of… Continue reading Ready (or Not!) for a Race and a Road Trip

Calvin, 22q Deletion · Family Life

CalBean Birthday!

Calvin turned 4!! And I’m calling this my 22q awareness post for this month 🙂 My oldest son, Calvin, was born with 22q11.21 Deletion Syndrome – meaning that he is missing a teeny tiny section of genes on his 22nd chromosome. 22q DS is not all that uncommon, and has gone by several different names… Continue reading CalBean Birthday!

Family Life

DMEs and HMPs

I used to work in a school where “HMP” was code for “High Maintenance Parent.” It was not a compliment. (And no, nobody ever called a parent that to their face. That I know of.) I think of being “high-maintenance” as being impatient, inflexible, and demanding. I think of HMP’s as being people who get… Continue reading DMEs and HMPs

Family Life

Take the Hard Things with the Happy Things

Somebody loved the train at the park yesterday! Henry was doing so well when we first got to the park. He watched Calvin ride the little kiddie boat ride. He was all right as we waited in the long line for the train (well, as long as Mama was holding him). And he was so happy… Continue reading Take the Hard Things with the Happy Things

Family Life · Tot Play

Spring Things

Happy Easter and Happy Spring from Calvin and Henry! We had a rainy Easter weekend, so the boys put on their rain coats and boots for their egg hunt. Henry can’t actually walk very well in his boots, so we hid his eggs up on the porch where it was dry. I can’t get over… Continue reading Spring Things

Family Life

Letting Go of Things Not Meant for Me

Recently I was reading a post from one of my favorite bloggers about her sweet new baby boy and about letting go of grief tied to her experiences with her older son with cerebral palsy during his infancy. And I felt a familiar pain in my chest – not in my actual physical heart, but… Continue reading Letting Go of Things Not Meant for Me

Calvin, 22q Deletion · Family Life

A Big Brother with 22q

When we found out our first baby, Calvin, born with 22q deletion syndrome, was going to be a big brother – and much sooner than we expected! – I tried to imagine what the future would hold for him and his baby brother. With no reason to worry about a genetic anomaly affecting my second… Continue reading A Big Brother with 22q

Family Life

Meltdown in the Milk Aisle

For a while I went on strike from bringing Henry with me to the grocery store. Grocery shopping is hard for Henry. He’s a sensory seeker and a voracious eater. So basically he wants to shake and bite all the crinkly food packages and eat everything in sight. He would grab food packages from the cart,… Continue reading Meltdown in the Milk Aisle

Calvin, 22q Deletion · Family Life

Calvin’s First Curse Word

It turns out I actually have a worse potty mouth now that I am a parent than I did pre-kids. Go figure. I was folding and putting away laundry a couple of weeks ago and Henry was napping and Calvin was hovering, buzzing around me like a little bee chattering silly things and jumping on… Continue reading Calvin’s First Curse Word

Family Life

Mama Needs a Time Out

Our snowy white wonderland weekend was wonderful and special. Until it wasn’t. For me, at least. On Friday, Calvin woke up so excited to see that his snow day dreams had come true and there was white all around! I remember lying in bed early in the morning and hearing him yell out, “MAMAAA!! IT… Continue reading Mama Needs a Time Out